Emma Heming Willis Shares New Update on Bruce Willis: "He's Still Very Present"

Emma Heming Willis is opening up once again about life with Bruce Willis. More than three years after the family announced his frontotemporal dementia diagnosis (following his 2022 aphasia diagnosis and retirement from acting), Emma says her husband is still“very present”and that the two of them share real moments of joy. She’s been honest about everything else too, including grief she calls paralyzing, her own depression, and the decision to move Bruce into a separate home designed around his care needs.

A big part of her message is about changing how we talk about dementia. Emma has said there’s a negative narrative that surrounds the disease, and she wants people to know that connection and love don’t disappear, they just look different. Daughters Mabel and Evelyn visit Bruce daily, and Emma’s memoir, The Unexpected Journey, has turned her personal experience into advocacy for caregivers everywhere. It’s heavy material handled with genuine heart.

The family’s openness has meant a lot to listeners with their own caregiving stories. So we want to hear from you: have you ever been a caregiver, and what got you through the hardest days?